Congress just passed an amendment attached to an appropriations bill to help grant 11-month-old Charlie Gard and his parents US citizenship, should they need it to receive treatment here in the US.
The Congresswoman who proposed the amendment offered it because her own daughter’s life was saved by experimental treatment when the Congresswoman was pregnant.
Per Town Hall:
Rep. Jaime Herrera Beutler (R-WA) gave a very personal and moving testimony Tuesday in support of her amendment, which ultimately passed, to grant 11-month-old Charlie Gard permanent residency in the United States so that he could come for an experimental treatment for his rare genetic condition. Beutler was once in an extremely similar situation with her own daughter.
Beutler’s daughter was saved by an experimental treatment while she was still in the womb:
Her daughter Abigail was diagnosed in the womb with the rare genetic condition, Potter’s Syndrome, a fatal diagnosis meaning that the baby had no kidneys. Rejecting the advice of doctors to get an abortion, Beutler received the experimental treatment of saline injections during her pregnancy as a substitute for the amniotic fluid absent due to the unborn baby’s missing kidneys.
Abigail is the first baby to survive birth without kidneys and her story has helped other babies who survived due to that same treatment. She later received a kidney transplant from her father, Daniel Beutler.
Charlie’s parents are still fighting a legal battle in UK courts, but are hoping their son will be granted the opportunity to receive treatment:
“The reason I’m moving this amendment,” she emphasized, “is because I strongly believe having faced circumstances, similar circumstances, that parents have the most at stake when it comes to standing up for their children.”
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A happy, healthy Abigail joined her mother during votes Wednesday who tweeted that voting “got a little more fun with the addition of my helper.”
Beulter acknowledged that there are “amazing programs and even governments that care about young people” but added “the people that most, I believe, know or are going to err on the right side of the best interests of their child is the parent and what I’m referring to is 11-month-old Charlie Gard’s quest and his family’s quest to fight a disease.”